Acromegaly Quality of Life Questionnaire (AcroQoL)

Clinical intent

AcroQoL is a self-administered disease specific questionnaire to measure quality of life in patients with acromegaly. It contains 22 items divided in two scales that measure physical and psychological aspects. The validation process demonstrated the questionnaire to have high internal consistency, reliability and responsiveness to change, therefore is a useful tool to be used in clinical trials as well as in the monitoring of patients in the clinical practice.

References

[1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC404471/ [2] https://dial.uclouvain.be/pr/boreal/object/boreal%3A37256/datastream/PDF_01/view [3] https://cdigital.uv.mx/bitstream/handle/1944/49725/FloresCruzCB.pdf?sequence=1&isAllowed=y

Pathway

initialization

Initial trigger context for participant details.

survey

Acromegaly Quality of Life Questionnaire (AcroQoL) questionnaire

Send questionnaire email

Sends an email explaining the questionnaire and including the survey link.

wait

Wait for questionnaire submission

Waits for questionnaire submission event.

Form preview

Interactive preview of the questionnaire. Not for clinical use. Responses are not stored.

Acromegaly Quality of Life Questionnaire (AcroQoL) Questionnaire

Please complete this questionnaire. Your responses help your clinical team assess your symptoms and monitor progress over time.

My legs are weak

I feel ugly

I get depressed

I look awful in photographs

I avoid going out very much with friends because of my appearance

I try to avoid socializing

I look different in the mirror.

I feel rejected by people because of my illness

I have problems carrying out my usual activities

People stare at me because of my appearance

Some part of my body (nose, feet, hands,...) are too big

I have problems doing things with my hands, for example, sewing or handling tools

The illness affects my performance at work or in my usual tasks

My joints ache

I am usually tired

I snore at night

It is hard for me to articulate words due to the size of my tongue

I have problems with sexual relationships

I feel like a sick person

The physical changes produced by my illness govern my life

I have little sexual appetite

I feel weak