Hurdle

IBD-Disk

screening

Digital administration of IBD-Disk to collect structured patient inputs for validated score calculation and clinical follow-up.

IBD-Disk

Clinical intent

Inflammatory bowel diseases [IBD] are disabling disorders. The IBD-Disability Index [IBD-DI] was developed for quantifying disability in IBD patients but is difficult to use. [1,2] The IBD Disk was developed using a consensus-based process to select elements from the IBD-DI that are most likely to be important in assessing a patient's disease burden and had relevance to both the patient and physician. [3] Several items (difficulties with work/education and feeling depressed/anxious) were combined owing to similarities in concept. In addition, the IBD CONNECT Steering Committee included “sexual functions” from the ICF comprehensive core set. The Working Group later also agreed to include “joint pain,” from the IBD-DI and ICF core set. The final IBD Disk included 10 items. Validations of the IBD DISK are currently ongoing. [4]

Clinical interpretation

Total score ranges from 0 (=no complaints) to 100 (=maximal complaints).

References

[1] Peyrin-Biroulet L, Cieza A, Sandborn WJ, et al. Development of the first disability index for inflammatory bowel disease based on the international classification of functioning, disability and health. Gut. 2012;61(2):241-247. doi:10.1136/gutjnl-2011-300049
[2]Shafer LA, Walker JR, Chhibba T, et al. Independent Validation of a Self-Report Version of the IBD Disability Index (IBDDI) in a Population-Based Cohort of IBD Patients. Inflamm Bowel Dis. 2018;24(4):766-774. doi:10.1093/ibd/izx063
[3] Ghosh S, Louis E, Beaugerie L, et al. Development of the IBD Disk: A Visual Self-administered Tool for Assessing Disability in Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2017;23(3):333-340. doi:10.1097/MIB.0000000000001033
[4] Le Berre C, Flamant M, Bouguen G, et al. VALIDation of the IBD-Disk instrument for assessing disability in Inflammatory Bowel Diseases in a French cohort: the VALIDate study [published online ahead of print, 2020 May 17]. J Crohns Colitis. 2020;jjaa100. doi:10.1093/ecco-jcc/jjaa100

Pathway

Mini Map

Form preview

Interactive preview of the questionnaire. Not for clinical use. Responses are not stored.

IBD-Disk Questionnaire
Please complete this questionnaire. Your responses help your clinical team assess your symptoms and monitor progress over time.
In the past week, because of my Crohn's disease or ulcerative colitis I have had aches or pains in my stomach or abdomen. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had difficulty coordinating and managing defecation, including choosing and getting to an appropriate place for defecation and cleaning myself afterwards. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had difficulty with personal relationships and/or difficulty participating in the community. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had difficulty with school or studying activities, and/or difficulty with work or household activities. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had difficulty sleeping, such as falling asleep, waking up frequently during the night or waking up too early in the morning. 
In the past week, because of my Crohn's disease or ulcerative colitis I have not felt rested and refreshed during the day, and have felt tired and without energy. 
In the past week, because of my Crohn's disease or ulcerative colitis I have felt sad, low or depressed, and/or worried or anxious. 
In the past week, because of my Crohn's disease or ulcerative colitis I have not liked the way my body or body parts look. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had difficulty with the mental and/or physical aspects of sex. 
In the past week, because of my Crohn's disease or ulcerative colitis I have had pains in the joints of my body.